by Blog Feed | Jun 18, 2019 | Uncategorized
My daughter tucks me in at night. She brings me a cold washcloth when the migraine fever attacks the temples; gently rinses the blue cloth with cool water, squeezes the excess into the sink, allowing the fever-reducer to flow through her fingers: milk dripping from...
by Blog Feed | Jun 18, 2019 | Uncategorized
When you have a rare and complex disability like spinal muscular atrophy, time can be a very precious commodity — like diamonds, Labradoodle puppies or a really good Wi-Fi signal. Since many everyday tasks can take us longer to complete, like showering, eating and...
by Blog Feed | Jun 18, 2019 | Uncategorized
Fifteen years ago I had a stroke and brain hemorrhage at the age of 37. It was a long journey to recovery as I had to see several physicians including a hematologist and neurologist on a monthly basis, go to physical and occupational therapy three times a week, and...
by Blog Feed | Jun 18, 2019 | Uncategorized
First, do no harm. It hit me out of nowhere. One moment, I was petting my dog, Ole, and the next, I sat breathless and terrified, my heart beating out of my chest. Transported to the darkest memories of my childhood, I felt like an 8-year-old again — a child who would...
by Blog Feed | Jun 18, 2019 | Uncategorized
I had already been ill for six years when I starting waking up from one day to the next with a neuropathy that could not be abated for the next 24 years. I felt so terrorized by this pain, it wasn’t until over 15 years after it took root in my body that I could focus...
by Blog Feed | Jun 18, 2019 | Uncategorized
Between work, family, friends and our homes, we tend to find very little “me” time. Often it seems the days will simply become one big blur as we progress activity to chore without once stopping to rest or enjoy life. The problem is that as humans we want to belong,...
